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Acromegaly Survey

ACROMEGALY DIAGNOSING
A RETROSPECTIVE SURVEY

DIRECTIONS FOR COMPLETING QUESTIONNAIRE:

DEMOGRAPHICS:

GENERAL: PLEASE GIVE ALL NUMERICAL INFORMATION ROUNDED TO NEAREST WHOLE NUMBER

EXAMPLES: 1YEAR 6 MONTHS = 2 YRS.

GENDER:
LEVEL OF EDUCATION: 
INCOME LEVEL: 
Marital Status:
Present Age: 
Country You Live In: 
State/Province you live in: 
Do you have a family history of acromegaly: 
If yes, what relationship: 
Have you had a pituitary tumor removed:
Are you on medication for your acromegaly: 
If yes, what medication: 
Who first diagnosed your acromegaly: 
If other, who:
At what age were you diagnosed with acromegaly: 
Estimate how many years from start of your first sign or symptom of acromegaly to time of being diagnosed with acromegaly: 
Listed below are signs and symptoms of acromegaly. Review those signs or symptoms that you had. In the Occurance column, number the symptoms you had in order that they occurred, 1 being the first sign or symptom and going up numerically. In the Years Had column, estimate how many years the sign or symptom occurred before being diagnosed with acromegaly. If you did not have a particular sign or symptom leave the number at 0 for that symptom.
Sign or Symptom Before Diagnosed Occurance
(did not have = 0)
Years Had
(did not have = 0)
Acral Enlargement    
Soft tissue growth
Enlargement of hands
Enlarged shoe size
Change in ring size
Increased Perspiration    
Sweating
Headaches    
Migraines
Tension
Cluster
Paresthesias    
Numbness or burning of hands or feet
Carpal tunnel syndrome
Glucose Intolerance    
Diabetes
Elevated blood sugar
Cardiovascular    
Heart failure
Heart attack
Enlarged heart
Hypertension    
High blood pressure
Goiter    
Enlarged thyroid
Thyroid nodule
Menstrual Disorders    
Irregular bleeding
Absence of periods
Decreased Libido    
Impotence
Visual Disturbances    
Tunnel vision
Loss of vision
Psychological    
Depression
Anxiety




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Pituitary Patient Resource Guide

The Pituitary Patient Resource Guide is the ONLY publication of its kind available to patients, their families, primary care physicians, insurance companies, and employers.
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The Pituitary Patient Resource Guide now available on CD.

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Last Revised : January 2006