Addison's

National Adrenal Diseases Foundation
The National Adrenal Diseases Foundation is a non-profit organization dedicated to providing support, information and education to individuals having Addison's disease as well as other diseases of the adrenal glands.

Advocacy

Australian Pituitary Foundation Ltd
Now incorporating the Children's Growth Foundation Ltd.
The APF's mission is to provide support to those who have experienced pituitary gland conditions; promote awareness and disseminate information helpful to the medical community, public, pituitary patients and their families. Publishes the Pituitary Connection Newsletter.

Bosnia and Herzegovina Acromegaly and Pituitary Disease Association has been undertaking several activites aimed at helping patients in these countries.  This organization is also responsible for establishing contacts in cooperation with University Hospital Centers in Sarajevo, Banja Luka, Mostar and Tuzla.  Interested parties should contact the organization directly:
The Bosnia and Herzegovina Acromegaly and Pituitary Disease Association
Titova bb
P.O. BOX  12
75300 LUKAVAC - Bosnia and Herzegovina
e.mail: aapbih@hotmail.com 

Books & Articles

Medirect
Online access to the full range of Blackwell Science medical products including Journals, Reference Books, Textbooks, CDs and Interactive Multi Media.

National Library of Medicine (NLM)
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials in all areas of biomedicine and health care, as well as works on biomedical aspects of technology, the humanities, and the physical, life, and social sciences.

New England Journal of Medicine Online

Brain Tumors

Acoustic Neuroma Association
The Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves. The association also furnishes information on patient rehabilitation to physicians and health care personnel, promotes research on acoustic neuroma, and educates the public regarding symptoms suggestive of acoustic neuroma, thus promoting early diagnosis and successful treatment.

German Acromegaly Register

American Brain Tumor Association
The American Brain Tumor Association is a not-for-profit, independent organization dedicated to

• Eliminating brain tumors by funding and encouraging research
• Providing educational materials and objective resource information to patients, their families, and the medical professionals who treat them
• Promoting excellence in patient care
• Advocating the investigation of research and treatment approaches

Brain Tumor Foundation of Canada
The Brain Tumor Foundation of Canada supports research into the cause and cure of brain tumors, strives to support and improve the quality of life of those affected, and provides information about brain tumors to the public at large.

Vision: To find a cure for brain tumors and to improve the quality of life of those affected.
Mission: To fund research, provide patient and family support services, and educate the public.

The Brain Tumor Society
The Brain Tumor Society exists to find a cure for brain tumors. It strives to improve the quality of life of brain tumor patients and their families. It disseminates educational information and provides access to psycho-social support. It raises funds to advance carefully selected scientific research projects, improve clinical care and find a cure.

Central Brain Tumor Registry of the United States
The Central Brain Tumor Registry of the United States, CBTRUS, is a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and, ultimately, for the prevention of all brain tumors.

Childhood Brain Tumor Foundation
The Childhood Brain Tumor Foundation was founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected by it.

Children's Brain Tumor Foundation
The Children’s Brain Tumor Foundation, a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.

National Brain Tumor Foundation
The National Brain Tumor Foundation is a non-profit organization dedicated to supporting people whose lives have been affected by brain tumors. We provide support and education for patients, their families and friends and raise funds for research to treat and cure brain tumors.

Pediatric Brain Tumor Foundation of the United States
Goals:

• find the cause and cure of childhood brain tumors through the support of medical research
• increase public awareness about the severity and prevalence of childhood brain tumors
• aid in early detection and treatment of childhood brain tumors
• support a national database on all primary brain tumors
• provide hope and emotional support for the thousands of children and families affected by this life threatening disease

Cancer

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer through research, education, advocacy, and service.

Cancer Care
Cancer Care is dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones. Cancer Care has helped over a million people nationwide through its toll-free Counseling Line and teleconference programs, its office-based services, and via the Internet. All services are provided free of charge and are available to people of all ages, with all types of cancer, at any stage of the disease. Cancer Care's reach, including its cancer awareness initiatives, also extends to family members, caregivers, and professionals, providing vital information and assistance.

CancerNet
A gateway to the most recent and accurate cancer information from the National Cancer Institute, a component of the National Institutes of Health.

Chemotherapy and Beyond - Chemo Care
Scott Hamilton's chemotherapy site offers the latest chemo information for cancer patients and their families, caregivers and friends.

Dana-Farber Cancer Institute
Dana-Farber Cancer Institute provides expert, compassionate care to children and adults with cancer while advancing the understanding, treatment, cure, and prevention of cancer and related diseases.

MayoClinic.com Cancer Resources Center
Offers comprehensive information on various types of cancer, including symptoms and screening, treatment options, and resources to help patients live and cope with cancer.

National Cancer Institute- Pituitary Tumor Treatment
Information and specifics on pituitary treatment from the National Institues of Health.

Children & Young Adults

Childhood Brain Tumor Foundation
The Childhood Brain Tumor Foundation was founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected by it.

Children's Brain Tumor Foundation
The Children’s Brain Tumor Foundation, a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.

National Institute of Child Health and Human Development (NICHD)
The National Institute of Child Health and Human Development is part of the National Institutes of Health, U.S. Department of Health and Human Services. The NICHD conducts and supports laboratory, clinical and epidemiological research on the reproductive, neurobiologic, developmental, and behavioral processes that determine and maintain the health of children, adults, families and populations.

Pediatric Brain Tumor Foundation of the United States
Goals:

• find the cause and cure of childhood brain tumors through the support of medical research
• increase public awareness about the severity and prevalence of childhood brain tumors
• aid in early detection and treatment of childhood brain tumors
• support a national database on all primary brain tumors
• provide hope and emotional support for the thousands of children and families affected by this life threatening disease

Diabetes

American Diabetes Association
To prevent and cure diabetes and to improve the lives of all people affected by diabetes.

Canadian Diabetes Association
Our mission is to promote the health of Canadians through diabetes research, education, service and advocacy.

Diabetes.com
Diabetes.com is a major gateway to diabetes information on the Internet. Based on a large and easily accessible online diabetes database, the editorial staff of Diabetes.com screens the latest news and research on diabetes, reviews the hundreds of diabetes-related sites on the World Wide Web and elsewhere in cyberspace, and provides an innovative and interactive forum for people with diabetes.

Diabetes Insipidus and Related Disorders
A network is for persons who have, or care for someone with ,any form of Diabetes Insipidus disorder. The main purpose of this network is to offer support for those surrounded by lack of information on these rare disorders.

Diabetes Insipidus Foundation
The main goal of The Diabetes Insipidus Foundation, Inc. is improved treatment, and ultimately the prevention and cure of all forms of diabetes insipidus through research.

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and related subspecialty fields as well as many basic science disciplines.

The Nephrogenic Diabetes Insipidus Foundation
The NDI Foundation was formed to support education, research, treatment and cure for Nephrogenic Diabetes Insipidus. Our goal is to create a communication channel to serve the entire NDI community: patients and their families, researchers, physicians and other health care providers.

General  Issues

AblePlay  - Children with disabilities are at greater risk for health concerns caused by obesity.  AblePlay is the
premier online tool for independent research and ratings of toys for Children with Disabilities designed to help parents select the most appropriate toys for their children.
Attention Deficit Disorder Resources
The website of Attention Deficit Disorder Resources has over 150 articles written by national ADHD authorities as well as adults with ADHD.

British Snoring & Apnoea Association
The British Snoring & Apnoea Association is dedicated to helping individuals determine the causes and appropriate treatments for snoring and sleep apnoea.

American Medical Association
Physicians dedicated to the health of America

Anger Management HQ Everything Anger Management, from Adolescent Anger Management to Youth Anger Management.

Armed Forces Institute of Pathology
The Armed Forces Institute of Pathology (AFIP) is a tri-service agency of the Department of Defense with a threefold mission of consultation, education and research.

ChronicBabe.com
Founded in 2005, ChronicBabe’s mission is to empower young women with chronic illness to take charge and live their lives to the fullest.

Disability Rights Online News
is a bi-monthly update about the Civil Rights Division's activities in the area of diability rights.  The Division enforces laws prohibiting discrimination based on disability in employment, housing, access to businesses serving the public, access to government programs and services, including voting and public transportation, and unconstitutional conditions in institutions of confinement.

The Endocrine Society
The Endocrine Society is the world's largest and most active organization devoted to the research, study and clinical practice of endocrinology.

GentleGiant.co.uk
A patient's experience and account of coping with pituitary problems

Healthfinder
Healthfinder® is a free gateway to reliable consumer health and human services information developed by the U.S. Department of Health and Human Services.

International Radiosurgery Support Association
The International Radiosurgery Support (IRSA) Association is an independent organization dedicated to providing educational information, emotional support, and physician and site referral on stereotactic radiosurgery. The Association promotes innovative research worldwide into the treatment of brain abnormalities, including tumors, lesions, and dysfunctions.

The Journal of Neurosurgery
publishes an on line peer reviewed journal called NeurosurgicalFocus.  The format of this journal is to present a new "Topic" each month that contains numerous peer reviewed articles. 

National Institute of Neurological Disorders and Stroke (NINDS)
The NINDS, an agency of the U.S. Federal Government and a component of the National Institutes of Health and the U.S. Public Health Service, is a lead agency for the Congressionally designated Decade of the Brain, and the leading supporter of biomedical research on disorders of the brain and nervous system.

Patient Advocate Foundation
Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. 

Well Spouse -
Help For Patients’ Spouses
Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled. Well Spouse support groups meet monthly. Members can share their thoughts and feelings openly with others facing similar circumstances in a supportive, non-judgmental environment. WS support groups are also an excellent source for information on a wide-range of practical issues facing spousal caregivers.


Water for Life
Of all the things we have ALL been told about good health habits, the one we neglect most often, relates to the drinking a daily supply of clean water!
(In most advanced countries, tapwater is just fine). This link, to a very unusual and straight forward web site, can be a boon to you, and your family's good health. Drink and enjoy. You KNOW it is good for you.

HIV & AIDS

The Hopkins HIV Report
Treatment of Hypogonadism in Men with HIV Infection

Medication Information

Medscape Newsletters
Staying informed of new developments in the world of medicine has never been easier or more convenient.

Internet Drug Index

Osteoporosis

National Osteoporosis Foundation
The National Osteoporosis Foundation (NOF) was formally established in 1986 as the only nonprofit, voluntary health organization whose mission is to reduce and ultimately eliminate the widespread prevalence of osteoporosis through programs of research education and advocacy.

Osteoporosis & Men – National Resource Center
Their mission is to provide patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism.

Patient Services

Center For Healthcare Information
Welcome to a free, searchable database of over 110,000 specialty healthcare services, facilities, businesses and organizations

Children's Air Transport for Life
Ensuring that no needy child is denied access to distant   specialized evaluation, diagnosis, treatment or rehabilitation for lack of medical air transportation.

DreamLine
Our mission is to provide free airline / vacation travel for children currently undergoing and/or recovering from a brain tumor, cancer, or leukemia.

Medical Search Engine
A Health and Medical Information Center

Mercy Medical Airlift
MMA's mission is to facilitate a charitable means of long distance medical air transport for all medically indigent, low-income and financially vulnerable patients in our society thereby ensuring equal access to distant specialized medical treatment or to appropriate facilities and settings for continuing care.

National Patient Air Transportation Helpline
The NATIONAL PATIENT TRAVEL HELPLINE provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network.


Allsup Inc. , the nation’s leading Social Security disability (SSDI) representation company, is providing free Web content on the SSDI process for those within the disability advocacy community.

University of Erlangen - Germany

Rare Diseases & Disorders

No links available currently

Thyroid Issues

American Thyroid Association
The mission of the American Thyroid Association is to promote scientific and public understanding of the biology of the thyroid gland and the pathogenesis and management of its diseases in order to prevent, diagnose and treat thyroid diseases and thereby improve quality of life.

The Thyroid Society
The Thyroid Society for Education & Research is a national, not-for-profit organization whose mission is to pursue the prevention, treatment and cure of thyroid disease.