Related Links - Pituitary Links

Acoustic Neuroma Association
The Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves. The association also furnishes information on patient rehabilitation to physicians and health care personnel, promotes research on acoustic neuroma, and educates the public regarding symptoms suggestive of acoustic neuroma, thus promoting early diagnosis and successful treatment.

Allsup Inc.
The nation’s leading Social Security disability (SSDI) representation company, is providing free Web content on the SSDI process for those within the disability advocacy community.

AAMFT and the California Division have been advancing the profession of marriage and family therapy for over 60 years. AAMFT-CA represents more than 3300 licensed professional therapists (MFT's) in California who uphold the high training and practice standards of our international professional association (AAMFT).
AAMFT-CA invites you to explore their site for current information about families, therapy, and clinical issues.
http://www.aamftca.org/

• Eliminating brain tumors by funding and encouraging research
• Providing educational materials and objective resource information to patients, their families, and the medical professionals who treat them
• Promoting excellence in patient care

Advocating the investigation of research and treatment approaches

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer through research, education, advocacy, and service.

American Diabetes Association
To prevent and cure diabetes and to improve the lives of all people affected by diabetes.

American Medical Association
Physicians dedicated to the health of America

American Thyroid Association
The mission of the American Thyroid Association is to promote scientific and public understanding of the biology of the thyroid gland and the pathogenesis and management of its diseases in order to prevent, diagnose and treat thyroid diseases and thereby improve quality of life.

Anger Management HQ
Everything Anger Management, from Adolescent Anger Management to Youth Anger Management.

Armed Forces Institute of Pathology
The Armed Forces Institute of Pathology (AFIP) is a tri-service agency of the Department of Defense with a threefold mission of consultation, education and research.

Attention Deficit Disorder Resources
The website of Attention Deficit Disorder Resources has over 150 articles written by national ADHD authorities as well as adults with ADHD.

Australian Pituitary Foundation Ltd
Now incorporating the Children's Growth Foundation Ltd.
The APF's mission is to provide support to those who have experienced pituitary gland conditions; promote awareness and disseminate information helpful to the medical community, public, pituitary patients and their families.

Bosnia and Herzegovina Acromegaly and Pituitary Disease Association has been undertaking several activites aimed at helping patients in these countries.  This organization is also responsible for establishing contacts in cooperation with University Hospital Centers in Sarajevo, Banja Luka, Mostar and Tuzla.  Interested parties should contact the organization directly:
The Bosnia and Herzegovina Acromegaly and Pituitary Disease Association
Titova bb
P.O. BOX  12
75300 LUKAVAC - Bosnia and Herzegovina
e.mail: aapbih@hotmail.com 

Brain Tumor Foundation of Canada
The Brain Tumor Foundation of Canada supports research into the cause and cure of brain tumors, strives to support and improve the quality of life of those affected, and provides information about brain tumors to the public at large.

Vision: To find a cure for brain tumors and to improve the quality of life of those affected.
Mission: To fund research, provide patient and family support services, and educate the public.

British Snoring & Apnoea Association
The British Snoring & Apnoea Association is dedicated to helping individuals determine the causes and appropriate treatments for snoring and sleep apnoea.

Canadian Diabetes Association
Our mission is to promote the health of Canadians through diabetes research, education, service and advocacy.

Cancer Care
Cancer Care is dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones. Cancer Care has helped over a million people nationwide through its toll-free Counseling Line and teleconference programs, its office-based services, and via the Internet. All services are provided free of charge and are available to people of all ages, with all types of cancer, at any stage of the disease. Cancer Care's reach, including its cancer awareness initiatives, also extends to family members, caregivers, and professionals, providing vital information and assistance.

CancerNet
A gateway to the most recent and accurate cancer information from the National Cancer Institute, a component of the National Institutes of Health.

Center For Healthcare Information
Welcome to a free, searchable database of over 110,000 specialty healthcare services, facilities, businesses and organizations

Central Brain Tumor Registry of the United States
The Central Brain Tumor Registry of the United States, CBTRUS, is a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and, ultimately, for the prevention of all brain tumors.

Chemotherapy and Beyond - Chemo Care
Scott Hamilton's chemotherapy site offers the latest chemo information for cancer patients and their families, caregivers and friends.

Childhood Brain Tumor Foundation
The Childhood Brain Tumor Foundation was founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected by it.

Children's Brain Tumor Foundation
The Children’s Brain Tumor Foundation, a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.

ChronicBabe.com
Founded in 2005, ChronicBabe’s mission is to empower young women with chronic illness to take charge and live their lives to the fullest.

Dana-Farber Cancer Institute
Dana-Farber Cancer Institute provides expert, compassionate care to children and adults with cancer while advancing the understanding, treatment, cure, and prevention of cancer and related diseases.

Diabetes Insipidus Foundation
The main goal of The Diabetes Insipidus Foundation, Inc. is improved treatment, and ultimately the prevention and cure of all forms of diabetes insipidus through research.

Diabetes.com
Diabetes.com is a major gateway to diabetes information on the Internet. Based on a large and easily accessible online diabetes database, the editorial staff of Diabetes.com screens the latest news and research on diabetes, reviews the hundreds of diabetes-related sites on the World Wide Web and elsewhere in cyberspace, and provides an innovative and interactive forum for people with diabetes.

Disability Rights Online News
is a bi-monthly update about the Civil Rights Division's activities in the area of diability rights.  The Division enforces laws prohibiting discrimination based on disability in employment, housing, access to businesses serving the public, access to government programs and services, including voting and public transportation, and unconstitutional conditions in institutions of confinement.

The PNA is proud to recommend several sites that deal with eating disorders, which can sometimes accompany pituitary disease.  Please take a look at these sites:
http://www.gurze.com/
http://www.nationaleatingdisorders.org/
And for our international visitors, this following site is filled with great info:
www.eatingdisorderexpert.co.uk/home.htm

Families USA is a nonprofit advocacy organization that offers resources on finding, choosing, and using health coverage.
http://www.familiesusa.org

GentleGiant.co.uk
A patient's experience and account of coping with pituitary problems

German Acromegaly Register

The PNA would like to recommend an excellent organization called the Health and Social Campaigners’ Network International. They produce a monthly newsletter called HSCNews Bulletin. It focuses on the interests of patient advocacy groups like the PNA, as well as health, caregiver, and disability groups. The bulletin is distributed to 4,000 health campaigning groups around the world. You can learn more, and sign up, here:
http://www.patient-view.com/bulletin.htm

The PNA encourages you to check out the site managed by the Office of Disease Prevention and Health Promotion (ODPHP), U.S. Department of Health and Human Services. Their consumer health information portal, www.healthfinder.gov, has served the public for almost a decade by linking consumers and professionals to reliable health information, daily health news, and health-related organizations. Healthfinder uses thorough selection criteria to evaluate organizations, and they have chosen to spotlight the PNA for our work to spread the news on pituitary issues.
http://www.healthfinder.gov/

International Radiosurgery Support Association
The International Radiosurgery Support (IRSA) Association is an independent organization dedicated to providing educational information, emotional support, and physician and site referral on stereotactic radiosurgery. The Association promotes innovative research worldwide into the treatment of brain abnormalities, including tumors, lesions, and dysfunctions.

Internet Drug Index

MayoClinic.com Cancer Resources Center
Offers comprehensive information on various types of cancer, including symptoms and screening, treatment options, and resources to help patients live and cope with cancer.

Medical Search Engine
A Health and Medical Information Center

Medirect
Online access to the full range of Blackwell Science medical products including Journals, Reference Books, Textbooks, CDs and Interactive Multi Media.

Medscape Newsletters
Staying informed of new developments in the world of medicine has never been easier or more convenient.

National Adrenal Diseases Foundation
The National Adrenal Diseases Foundation is a non-profit organization dedicated to providing support, information and education to individuals having Addison's disease as well as other diseases of the adrenal glands.

National Cancer Institute- Pituitary Tumor Treatment
Information and specifics on pituitary treatment from the National Institues of Health.

National Institute of Child Health and Human Development (NICHD)
The National Institute of Child Health and Human Development is part of the National Institutes of Health, U.S. Department of Health and Human Services. The NICHD conducts and supports laboratory, clinical and epidemiological research on the reproductive, neurobiologic, developmental, and behavioral processes that determine and maintain the health of children, adults, families and populations.

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and related subspecialty fields as well as many basic science disciplines.

National Institute of Neurological Disorders and Stroke (NINDS)
The NINDS, an agency of the U.S. Federal Government and a component of the National Institutes of Health and the U.S. Public Health Service, is a lead agency for the Congressionally designated Decade of the Brain, and the leading supporter of biomedical research on disorders of the brain and nervous system.

National Library of Medicine (NLM)
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials in all areas of biomedicine and health care, as well as works on biomedical aspects of technology, the humanities, and the physical, life, and social sciences.

National Osteoporosis Foundation
The National Osteoporosis Foundation (NOF) was formally established in 1986 as the only nonprofit, voluntary health organization whose mission is to reduce and ultimately eliminate the widespread prevalence of osteoporosis through programs of research education and advocacy.

New England Journal of Medicine Online

Osteoporosis & Men – National Resource Center
Their mission is to provide patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism.

Patient Advocate Foundation
Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

Patient Services Incorporated
PSI is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind.  For nearly two decades, PSI has helped people who live with certain chronic illnesses or conditions locate suitable health insurance coverage and access ways to satisfy expensive co-payments.  PSI provides assistance with the cost of health insurance premiums associated with COBRAs, State High Risk Pools, Open enrollment,  Guaranteed Issue policies, HIPAA conversion policies; and prescriptions co-payments associated with private insurance as well as with Medicare Parts B and D.

For more information, visit: http://www.uneedpsi.org/CMS400Min/about/index.aspx?id=50

PSI is the "ground breaking" 501(c)(3) non-profit, charitable organization of its kind.  For nearly two decades, PSI has helped people who live with certain chronic illnesses or conditions locate suitable health insurance coverage and access ways to satisfy expensive co-payments.  PSI provides assistance with the cost of health insurance premiums associated with COBRAs, State High Risk Pools, Open enrollment,  Guaranteed Issue policies, HIPAA conversion policies; and prescriptions co-payments associated with private insurance as well as with Medicare Parts B and D.

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Pediatric Brain Tumor Foundation of the United States
Goals:

• find the cause and cure of childhood brain tumors through the support of medical research
• increase public awareness about the severity and prevalence of childhood brain tumors
• aid in early detection and treatment of childhood brain tumors
• support a national database on all primary brain tumors

provide hope and emotional support for the thousands of children and families affected by this life threatening disease

The Brain Tumor Society
The Brain Tumor Society exists to find a cure for brain tumors. It strives to improve the quality of life of brain tumor patients and their families. It disseminates educational information and provides access to psycho-social support. It raises funds to advance carefully selected scientific research projects, improve clinical care and find a cure.

The Endocrine Society
The Endocrine Society is the world's largest and most active organization devoted to the research, study and clinical practice of endocrinology.

The Hopkins HIV Report
Treatment of Hypogonadism in Men with HIV Infection

The Journal of Neurosurgery
publishes an on line peer reviewed journal called NeurosurgicalFocus.  The format of this journal is to present a new "Topic" each month that contains numerous peer reviewed articles.

The Nephrogenic Diabetes Insipidus Foundation
The NDI Foundation was formed to support education, research, treatment and cure for Nephrogenic Diabetes Insipidus. Our goal is to create a communication channel to serve the entire NDI community: patients and their families, researchers, physicians and other health care providers.

The Thyroid Society
The Thyroid Society for Education & Research is a national, not-for-profit organization whose mission is to pursue the prevention, treatment and cure of thyroid disease.

University of Erlangen - Germany

Water for Life
Of all the things we have ALL been told about good health habits, the one we neglect most often, relates to the drinking a daily supply of clean water!
(In most advanced countries, tapwater is just fine). This link, to a very unusual and straight forward web site, can be a boon to you, and your family's good health. Drink and enjoy. You KNOW it is good for you.

Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled. Well Spouse support groups meet monthly. Members can share their thoughts and feelings openly with others facing similar circumstances in a supportive, non-judgmental environment. WS support groups are also an excellent source for information on a wide-range of practical issues facing spousal caregivers.
http://www.wellspouse.org/

Spurred on by heightened public concerns about lifestyles and chronic disease, patients are turning into activists. Delays and deficiencies in healthcare services have hardened their perspectives. It may not be a role that patients welcome, but they are driven to take action when their child lies sick, or a loved one is in pain, and care and treatment falls short of expectations. Patient activists are adamant that they are riding the winds of change.
http://media.pituitary.org/pdf/WindsOfChangeHSC08.pdf

   Obesity is fast becoming a major health issue for many children in the United States. Children with disabilities can be especially vulnerable to these health concerns. AblePlay believes it is so important to keep all children active regardless of their ability level. Finding the right toys to keep children with special needs
active and involved can be especially challenging.

AblePlay is the premier online tool for independent research and ratings of toys for Children with Disabilities designed to help parents select the most appropriate toys for their children at www.ableplay.org.

Check out the ratings and reviews of new toys for children with special needs at www.ableplay.org. Information includes ratings by disabilities and details on creative and developmental uses.